Mithuruwela

Mithuruwela was created to Befriend, Support and Help Cancer Patients, their Caregivers and those affected by Cancer in Sri Lanka

Thursday, October 19, 2006

MITHURUWELA – EVENTS & ACHIEVEMENTS 2006

Dear Friend,

We have been active but, delayed in bringing you this report of what Mithuruwela has been doing for the year 2006 so far.

The highlights of the year for Mithuruwela are as follows;

January 2006: The year began with a very impressive Launch of our Website on January 28th.

The venue for the launch was the Auditorium of the British Council in Colombo 3, and the event attracted an enthusiastic audience of donors, well-wishers, Volunteers and friends. The launch began with an overview of Mithuruwela, its objectives and work done ,both in the areas of publications as well in Befriending, by Professor Ryhana Raheem, Chairperson of Mithuruwela. This was followed by a powerful Keynote address by Dr Indrani Amarasinghe, Surgeon, National Cancer Institute who spoke of the escalating incidence of cancer in Sri Lanka. Patron of Mithuruwela, Prof AH Sheriffdeen, the next speaker made a plea for support for organizations like Mithuruwela. The Chief Guest for the event, Dr Augustino Borra, Country Director, World Health Organization, Sri Lanka, then formally launched the Mithuruwela Website, www.mithuruwela.org and features of the site were explained by Mr. Divarkar Goswami, a Mithuruwela Volunteer who maintains the site. The Address of Thanks was made by Ms Kiran Dhanapala, Secretary, Mithuruwela , and the evening concluded with an informal reception held in the garden of the British Council.

March – September 2006: The list of publications completed by Mithuruwela continues to grow.

We began with a brochure on the National Cancer Institute which was commissioned by the NCI, Maharagama of which 10,000 copies were done initially. As all the Sinhala copies were depleted, in August a further 5000 copies of the Sinhala version of this brochure was handed over to the NCI. We also produced a brochure on Prostate Cancer with the kind support of Nihal and Crystal Goonewardene of Washington DC, USA now printed in Sinhala, Tamil and English. Other brochures completed and handed over to the NCI include publications on Chemotherapy and Radiation, and a children’s booklet called “Punchi Mala” on Leukemia funded by Chatham House Limited. We are currently seeking support for a brochure on “Mastectomy and After’ written by Dr Amarasinghe. To-date, Mithuruwela has completed about 50,000 brochures and we thank all our friends for their generosity that has helped us to continue this much-needed task. A complete list of Mithuruwela publications in Sinhala, Tamil and English is posted separately.

We are happy to report that we have been granted permission by the NCI to distribute our brochures through the Medical Education Unit. We thank Dr N Paranagama, Acting Director, NCI for her warm espousal of our cause.


July 2006: In July 2006, Mithuruwela completed one year of Befriending services at “Shanthi Nivasa” Maharagama.

We also wish to thank the owner of Shanthi Nivasa for so generously offering us the space in which to conduct these befriending activities. It is indeed a tribute to our dedicated group of trained Befriender Volunteers that this activity too has continued to expand. Up to end September 2006 we have befriended 506 callers (i.e. 136 New Callers and 370 Old Callers paying us multiple visits) from all regions and communities of Sri Lanka. Moreover we have extended our services to the patients in the Transit Home run by the Ceylon Cancer Society. Our work in this field has only made us more acutely aware of how desperate the need is for such Befriending in Sri Lanka. Details of Befriender Services provided are available separately.


August 2006
: NCI Ward Befriending

The excellent work done by our Befriender Volunteers was instrumental in Mithruruwela being requested to commence a pilot project of Befriending in a Female Ward at NCI, Maharagama. This has been welcomed by the patients, and we look forward to extending the service to other wards in future with the support of more trained volunteers. This was initiated at the request of the Doctor in charge of the ward with patients selected by the Ward Sister for each session of befriending on a weekly basis. We have befriended a total number of 21 female patients so far since we started on 2nd August 2006.

The service will be extended in the near future if the hospital authorities perceive this service as beneficial to the patients.

The Befriending Sessions were very rewarding but issues raised from Befriending Sessions indicate a need for greater support by Mithuruwela. Greater efforts and support is needed for Tamil Befriending - and we appreciate your sharing this need so that those who speak Tamil could join as Trained Mithuruwela Befrienders. There is also an urgent need for financial assistance – and we shall have to consider how best we can respond to this. Currently the Befriending is confined to a female ward but this should be extended to male wards too. Once again a need – for male Befrienders!


Our Thanks and Appreciation

Throughout the year, we have also conducted Training and Refresher Sessions for those involved in Befriending. We thank Nalini Ellawala , Founding Director, Sri Lanka Sumithrayo and Director, ‘Mel Medura’ for agreeing to train and inspire our Volunteers. These Training Sessions also included talks on aspects of Befriending and were as follows;

1. Workshop at Cancer Society Kandy - 21/06/05

2. Talk by Dr Dehan Gunasekera, Oncologist, Karapitiya Hospital - 14/08/05

3. Talk by Dr Indranee Amarasinghe, Surgical Oncologist - 03/09/05

4. Talk by Dr Rosalie Shaw on Palliative Care at Shantha Sevena Hospice - 07/09/05

5. Talk by Mr John Weerakone, Psychotherapist from UK - 08/10/05

6. Talk by Mr Henry Jayasena

7. Talk on Meditation by Mr Theja Siriwardena

Future Initiatives

Further, we have just initiated work in developing a Question and Answer format video with the kind assistance of Henry Jayasena, Namel and Malini Weeramuni and supported by the Open University. The video will be in the national languages and will address many common issues facing cancer patients and their care givers.

As noted earlier a brochure series on “Mastectomy and After’ written by Dr Amarasinghe is urgently required for use by Breast Cancer patients in the NCI, Maharagama and other facilities. We are currently seeking support for the activity. Please contact us at mithuruwela@gmail.com if you are able to assist in this initiative in any way.


Finally, we thank all of you for your support, assistance, and active encouragement in our efforts to help cancer patients and their families face a very hard and challenging period.


We urgently need the active involvement of more volunteers in our work – both as Befrienders, and those with computer knowledge to help coordinate our information projects. You can contact us with your interest on; mithuruwela@gmail.com


Thank you.

The Mithuruwela Management Circle

When Someone You Know Has Cancer

Wellness Monthly

Healthy matters to keep in mind.

When Someone You Know Has Cancer

How to Help Them Cope

When a friend or relative has cancer or other serious illness, it’s perfectly normal to feel worried and uncomfortable. However, if you are not careful, your feelings could change the way you relate to your loved one. It’s important to remember that your friend or relative is still the same person. Only now, that person needs extra support — especially during periods of medical treatment and hospital stays.

You can play an important role in making life as normal as possible in a world that has been turned topsy-turvy. Here are some ways.

Listen

People with cancer basically need someone to listen to them talk about their current fears and their future plans. They don’t necessarily need you to "do" anything. It’s not always easy to be a silent refuge from a day of chemotherapy or a night of sleepless panic –– but it can be more helpful than you may think.

Beware of conflict

The period right after diagnosis is often a time of anger, fear and confusion. People with cancer might lash out at you in an attempt to find a target for their frustration. Don’t take these outbursts personally, and try to respond with patience and compassion if you can.

Be yourself

Many people think they don't know how to act around people with cancer. Just do what you normally do, and don't try to be someone you’re not. People with cancer need their family and friends for a sense of normalcy. They have to deal with enough changes in their life without having to adapt to a new you.

Keep looking for hope

While cancer is undeniably a major illness, it is not necessarily fatal. Many cancer patients have been treated successfully, and many others live a long time after the diagnosis. It is hard not to think about the person dying, but it's important to focus on living. Staying positive will encourage people with cancer to do the same.

For those with cancer, surviving the disease can be a difficult task. But you can give them positive support and let them share their difficulties with you. Facing cancer together makes it easier to endure the hard times, and to look forward to brighter days ahead.

Sometimes life can feel overwhelming. If you find that you are having trouble doing daily tasks or that problems are affecting your relationships with friends and family, you should consider seeking professional counseling. Asking for help is never a sign of weakness or failure, especially in situations too difficult to handle alone. UBH is here to help. Call or log on anytime for help with any of life’s challenges.

Tips for helping someone cope with cancer.

  • Let the person with cancer start talking. You can’t make people talk about their feelings before they are ready, but you can be ready to listen when they are.

  • Show your support. "I'm here" can be the most reassuring words you can say.

  • Share your anxieties and uncertainties with the person, if appropriate. You both can support each other and give and take strength as you are able.

  • Don’t give false assurances by saying, “Don’t worry,” or “Everything will be all right.” Try to lift spirits without denying the truth. It can be as simple as doing fun things you both enjoy.

  • Don’t assume the worst. Even if the future is uncertain, you can still look forward to the possibility of a positive response to treatment, as well as spending good times together.

What do you say when you don’t know what to say?

The following are some ideas for how to offer help.

  • Don’t start the conversation with, "How are you?" When you ask the question right away, the person may not know whether you really want an answer or are simply being courteous. Engage in some small talk for a few minutes before asking how things are going. Be sure you have time to listen before you ask the question.

  • Drop the person a note. A simple message like, "I’ve been thinking of you and wondering how you are doing" lets the person know you care. It can make a big difference. You might suggest getting together for lunch in a few days. Be sure to follow through with the plans you make.

  • Be aware of times of stress. For example, if you know when the person is going to the doctor for an appointment or treatment, call a few hours later to ask how it went. Your caring act may help the person cope with any bad news.

  • Reinforce trust. Let the individual know that you will keep any personal information to yourself, even if the person doesn’t specifically ask you to.

  • Don’t speak. Sometimes a hug or an arm around the shoulder can say more than any words.

  • Be honest. It’s okay to tell the person, "I don’t know what to say. I just want you to know that I’m thinking of you." The person with cancer doesn’t need advice or words of wisdom, just your caring and your presence.

Resources

United Behavioral Health

Ask your HR representative for your access code and toll-free number.

http://www.liveandworkwell.com/

The “Health and Wellness” section offers educational articles on dealing with the stress of cancer and other chronic illnesses.

WebMD

http://www.webmd.com/diseases_and_conditions/cancer.htm

The site’s Cancer Health Center contains information and tips on coping with several types of cancer.



The information and therapeutic approaches in this article are provided for educational purposes only and are not meant to be used in place of professional clinical consultations for individual health needs. Certain treatments may not be covered in some benefit plans. Check your health plan regarding your coverage of services.

Update on Mithuruwela Publications – Sept. 2006

A complete list of ALL brochures printed by Mithuruwela is below. This includes those designed by Mithuruwela as well as those designed and commissioned by the National Cancer Institute, Maharagama for printing by Mithuruwela.








Also published: At request of MEU – 5000 brochures on Radiation in Sinhala. Tamil and English versions were available at the Medical Education Unit (MEU), NCI, Maharagama.

Total published: 35,000 brochures.

Ryhana Raheem. (Chair- Publications)

Review of Mithuruwela Activities June 05-Sept 06

MITHURUWELA CENTER
A Review
July 20th 2005 - 15th September 2006
______________________________________________________________________________
During the period 20th July 2005 to 15th September 2006, befriending sessions were conducted at the Mithuruwela Center for a period of 129 days.

A total of 131 callers were befriended. While 55 callers visited the Center just once, the remaining 76 made multiple visits. Therefore, during the 129 day period, a total of 490 befriending sessions were conducted. This is an average of around 4 sessions per day.


The term ‘New Caller’ is used to describe persons who visit the center for the first time. The term ‘Old Caller’ is used to describe persons who are visiting the center for a second or subsequent occasion.

Of the 131 callers, 46 are males and 85 are females.
Forty Six of those befriended were Patients and the remaining 85 were Caregivers



The age group to which the callers belong are given below.


The primary needs of the callers were as follows :

There were multiple needs in the case of some callers.

The types of cancers encountered during the befriending sessions were as follows :



The cancers that have been classified under ‘Other’ include the following:
Kidney, Spine, Hydatidiform, Mole, Oral, Nasopharyngeal Lymphoma, Rectal, Liver, Chest Spleen, Lymph Node, Esophagus, Melanoma.

The areas of residence of Callers by District are as follows :

District

No. of Callers

Ampara

12

Anuradhapura

2

Badulla

6

Batticaloa

7

Colombo

3

Galle

1

Gampaha

10

Hambantota

1

Jaffna

2

Kandy

5

Kalutara

6

Kurunegala

19

Matara

8

Matale

2

Moneragala

4

Nuwara Eliya

3

Polonnaruwa

4

Puttalam

15

Ratnapura

7

Trincomalee

2

Vavuniya

6

Mannar

2

Deniyaya

1

Weeraketiya

1

Angunakolapalessa

2